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Resources

Organizations and websites

 

The American Behçet’s Disease Association (ABDA) supports, educates and empowers the Behçet’s community, while continuously advocating for better research diagnostics, treatment and a cure.

The ABDA website offers a wide range of information specific to Behçet’s Disease.

Visit ABDA at: behcets.com

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The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

The NORD website provides extensive information on a large number of rare diseases, including Behçet’s Disease.

Visit NORD at: rarediseases.org

The Vasculitis Foundation is a membership-based organization of patients with vasculitis, caregivers, friends, family, physicians, and researchers advocating for early diagnosis, better treatments, and improving quality of life for patients with vasculitis, including Behçet’s Disease.

Visit: vasculitisfoundation.org

Hosted by trusted patient advocates, RareConnect is a place where rare disease patients can connect with others globally.

Visit: rareconnect.org

Clinical resources

Recognizing Behçet’s Disease

Tips and information for when you suspect Behçet’s Disease

What is Behçet’s Disease?

A brief overview of Behçet’s Disease for newly diagnosed patients

Images of Behçet’s disease manifestations

Working to make a difference in behçet's disease

In Behçet's Disease, every patient's experience is different

See what advocates have to say about raising awareness for Behçet's Disease and helping bring more resources to patients in need.

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This site is intended for US audiences only.

Resources for your patients with Behçet’s Disease

The Vasculitis Pregnancy Registry collects information on the reproductive health of women with vasculitis who become pregnant. Online surveys assess a) vasculitis severity and pregnancy-related experiences, and b) pregnancy outcomes.

Visit: vpprn.org/vpreg

The Vasculitis Patient-Powered Research Network works to improve the health of patients with vasculitis. Studies directly engage investigators, caregivers, and health systems to advance the medical knowledge and care of vasculitis.

Visit VPPRN at: vpprn.org

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