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From diagnosis to daily life, each person’s experience with Behçet’s Disease is different. Create a personalized infographic by answering a brief questionnaire about your journey as a patient or caregiver of a loved one with Behçet’s Disease. Then help raise awareness by sharing your personal journey with Behçet’s Disease on social media using #myBehcetsJourney.
According to a study, the average time to a Behçet’s Disease diagnosis is 5.3 years from the onset of symptoms.1,*
*Study of 661 patients at the Behçet’s Disease units of Akdeniz, Cukurova, Firat, Gazi, Inonu, and Mersin Universities.
†Not inclusive of all possible differential diagnoses.
THE INTERNATIONAL STUDY GROUP (ISG) CRITERIA CAN AID IN DIAGNOSING BEHÇET’S DISEASE4
NOTE: A DIAGNOSIS CAN ONLY BE MADE BY A PHYSICIAN
(aphthous or herpetiform) observed by the physician or patient, recurring at least 3 times in one 12-month period
Plus at least 2 of the following criteria:
Aphthous ulceration or scarring observed by physician or patient
Anterior uveitis, posterior uveitis, or cells in vitreous on slit-lamp examination
Retinal vasculitis observed by ophthalmologist
Erythema nodosum observed by physician or patient, pseudofolliculitis, or papulopustular lesions
Acneiform nodules observed by a physician in postadolescent patients not on corticosteroid treatment
I receive many referrals for patients suspected of having Behçet’s Disease; however, a careful clinical evaluation is needed to rule out other conditions that may mimic some of the features of Behçet’s Disease. In my experience, I have seen a range of misdiagnoses, including recurrent aphthous stomatitis, herpes simplex virus infection, and inflammatory bowel disease, including Crohn’s disease.
Professor of Internal Medicine
Marvin and Betty Danto Research Professor of Connective Tissue Research
Division of Rheumatology
University of Michigan
We don’t know what causes Behçet’s Disease. It’s definitely an inflammatory disease; multiple cytokines have been implicated. There seems to be a genetic component. Several environmental triggers have been proposed, but there isn’t strong evidence for any single specific trigger.
Director of the Rochester Rheumatology Center
Rochester Hills, Michigan
The patient journey with undiagnosed Behçet’s Syndrome is frustrating and potentially debilitating. Greater education will help facilitate timely referrals and ultimately a better patient experience.
St. John Hospital and Medical Center
Beaumont Hospital – Grosse Pointe, Michigan
Suspect Behçet’s Disease?
Refer to a rheumatologist to confirm a diagnosis
Help raise awareness of the
challenges of Behçet’s Disease and
reduce the delay in diagnosis
The quality of life for a person with Behçet’s Disease can be impacted by a myriad of symptoms. Unfortunately, obtaining an accurate diagnosis can add to the challenge of living with this disease.5,6 Sharing the below information via social media will help raise awareness of Behçet’s Disease and may even prevent a delay in its diagnosis.
Share to Raise Awareness
1. Alpsoy E, Donmez L, Onder M, et al. Br J Dermatol. 2007;157(5):901-906.
2. Barnes CG. History and diagnosis. In: Yazici Y, Yazici H, eds. Behçet's Syndrome. Springer; 2010:7-33.
3. Ambrose NL, Haskard DO. Nat Rev Rheumatol. 2013;9(2):79-89.
4. International Study Group for Behçet's Disease. Lancet. 1990;335(8697):1078-1080.
5. Diagnosis of Behcet's Disease. American Behcet's Disease Association website. behcets.com. Accessed October 4, 2018.